Based on the research and reading I've been doing of late, I'm deciding to break out and try some alternative things with Jason.
The first thing we've just begun is EFT (Emotional Freedom Technique) which is tapping of the meridian points of the body to help balance his energy to help him heal. I've been using it on myself and am quite amazed by the little things I've seen already. I've made some new friends in the world of EFT, and one in particular has been wonderful enough to get me started in the right direction. Coincidentally, she has a child who's been through a very similar experience to Jason's and he's now a thriving teenager. I have nothing to lose and only everything to gain, so I'm going with it!
The other things I'm planning on doing is introducing digestive enzymes and weaning him from his Cimetidine (Tagamet). Long long ago, Jason was put on Zantac to see if that would make the vomitting stop. It didn't. Neither did the swallowed steroids given at that time. The only thing that made a difference was changing his diet. Some time later he was switched to Cimetidine (from the Zantac) and then I had even asked if he could stop taking it because it doesn't seem to make a difference anyway. I was told "just have him keep taking it... it won't hurt anything." Well, I'm now thinking that it might be hindering some things indeed. It's been known to cause certain vitamins/minerals to not be absorbed as well as they should, iron being one of them. Hmmmm... that's funny because Jason always tests low for iron and has been on an iron supplement for a very long time. He's always just under the cut-off to normal. I wonder if weaning him off the unnecessary Cimetidine would help improve the iron issue as well. In addition to that, I would like to introduce him to digestive enzymes. Another new friend had recommended this option. So I researched it like crazy and it sounds like it would be very beneficial to Jason's health. One very helpful website I found was http://www.enzymestuff.com/ . I am going to make my purchase and call the GI to keep her informed that this is what we want to do. I only hope she agrees without giving me any issue about it. I'll have to keep you posted.
Until then! We'll be busy enjoying the holidays and not thinking about all this crazy health stuff!
Sounds like you are doing wonderful things! I started my 13 yr old on digestive enzymes this year. Between her allergies and her vegetarianism I thought "we'd better get everything we can out of the food she IS eating". Best of luck.
ReplyDeleteWe are about a week and a half into it. We are doing it gradually and so far no problems! I'm taking them too because of all the benefits I read about. Plus, I wouldn't make my kid take something I wouldn't take myself. So here's to better digestive health to us all!
ReplyDeleteMy son was diagnosed with EG at 15 months old. I started a blog filled with recipes that don't contain ANY of the most common allergens and tons of alternative ingredients.
ReplyDeletePlease check it out.
http://funkyfoodallergies.blogspot.com/
I'll post on this soon, but we are starting a "super shot". It will be a shot glass full of some milk product with powdered L-Glutamine, slippery elm, inulin, digestive enzymes and probiotics. Let me know if you want some info on those products.
Thanks Trisha... I will look more thoroughly through your blog, but our list of "do not eats" is longer than yours. We can't even do sorghum! We are doing enzymes and probiotics but wouldn't be able to use anything with milk in it. Keep up the good work. You're on the right track!
ReplyDeleteI was doing a search and found this old post. Would you mind sharing what happened with the enzymes? My son was unable to swallow non-liquids and had severe heartburn for 2 years. Reflux meds were not effective, and digestive enzymes were like magic for him. (We tried 2 products that didn't work before finding the one that did.) A recent scope (though he's been symptom-free for 5 years--we scoped to rule out celiac because of bowel trouble) revealed very high levels of eosinophils. We don't have diagnosis yet but are thinking about putting him back on enzymes. Very curious to hear whether this has helped others with EoE or not.
ReplyDelete