Thursday, February 26, 2009

February GI Visit - All is good

We went to visit the GI again today.... just the usual "I feel fine, why do I have to always come see you?" kind of visit! Jason did just come down with his first ear infection at age 5 and is on antibiotics for that, but otherwise, he's doing fine.

We talked to his GI about the newly introduced digestive enzymes, and she was supportive of that. She said they certainly wouldn't hurt anything, especially if they're just your regular non-prescription enzymes. She also supports the probiotics we introduced last summer. As well, she's good with us trying to find better vitamin and mineral supplements that are hypoallergenic.

Iron is still borderline almost normal, but not quite. That seems to be the case. So I asked her, being a Mom who reads up on things and has questions of my own, if we could take out the Cimetidine since it can cause absorption issues, especially with iron. She was all for that, so we'll take it out of his diet and see how he does. We're totally expecting him to be fine since they never made an improvement when they were first introduced 2.5 years ago! Perhaps that will help with his iron absorption. The other thing we were told to do to help with the iron is to give it with about 60 mg of Vitamin C per 0.6 ml of the ferrous sulfate. Crossing our fingers that this all works and then we can at least eliminate an unnecessary drug and the iron supplements. That would mean we'd be down to the Zyrtec and the Flovent along with regular enzymes, probiotics and vitamins/minerals. Oh yeah, and that peky restricted diet.

No scope until the summer if all goes well with the removal of the Cimetidine. And I doubt we'll revisit with the allergist until after the next scope, so that means we wouldn't be re-introducing foods into his diet any time soon.

That's the hardest part for us (me), is wondering how he's doing on the inside. He looks and feels great on the outside! I guess I should not get ahead of myself. But instead be super grateful (and I am SUPER grateful) that he feels great every day and is growing and thriving just perfectly. And when the time is right, we'll add some foods back into his diet. He's managing pretty darned good considering what he's not currently eating!

We are also continuing EFT treatment to help improve health, remove allergies, and let go of any underlying issues that might be contributing to this condition. For example, the other day I said that we want to get rid of some of his medicines... he said "I don't want to get rid of my Flovent spray!!!" Why??? Only he can really know. Perhaps it makes him feel important, special, or something. Yet, he's been asking a lot to eat chicken and other things. So hopefully he'll realize that eating chicken, etc. is more fun than having an inhaler!

And onward we continue!

2 comments:

  1. Tracy,

    My name is Samantha and I have a five year old daughter named Piper who has severe EE.Over the course of the last 10 months she has cascaded into extremes. Over the course of the last ten months she has gone from a child who we thought could eat anything to a child completely restricted from Milk, Soy, Egg, Wheat, Corn, All Nuts, Fish and Seafood. Piper has had 6 surgeries since July 2008 ranging from EDG-Colonoscopies to gastronomy tube placements and replacements and change outs, she has had NG tubes and so much more. In July her Eos were numbering 53 per high powered field. In October she went to a complete diet of Neocate Jr. and nothing else! As of current her body has undergone so much stress that we are now battling a new heart condition brought on by the stress of the EE, she has developed neurological disfunction that impacts her hearing, eyesight and speech due to her continued hightened pain levels and the doctors now believe that she has colitus as well as Allergic enteropathy in addition to the EE.

    The amazing part is that my daughter never complains, rarely cries except for when the pain is tearing her apart and the medications aren't controling it. As of yesterday she is up to 15 medications taken one to three times daily.

    My daughter and her strength amaze me and she is truly my hero. I am currently trying to get my ducks in a row to form a local support group as well as put together a fund raiser for EE research and awareness.

    Thank you for your blog and sharing your story...it means the world to those of us who need to know we are not alone.

    Samantha Strickland
    Boise, ID
    SKSPhotography@gmail.com

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  2. Thank you for sharing your story. I have a little boy with and eos disorder too. It is hard!

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