Monday, April 14, 2008

Doctor Communication Issues for Eosinophilic Esophagitis Management

I'm getting a bit frustrated with the lack of communication betwen my doctors. We see a GI and and Allergist and our Pediatrician. Our last pediatrician didn't give two hoots about my son's Eosinophilic Esophagitis. He also had some other major downfalls and he is no longer our pediatrician. We now have a great Ped that we love. He is listening and learning about EE.

The real issue is between the GI and the Allergist. They are both good, both highly recommended, and they know of each other. We saw the allergist in Jan. and Feb. of this year for testing and consultations. He said he was going to contact the GI and discuss our case with her and would get back to me. I waited, ended up calling and was told he was out of town and had our chart. (Hopefully at some big EE convention learning??) Anyway, still haven't heard anything from him.

Today we went for a routine visit to the GI and she said she had received a letter with the allergy testing results, but that was about it. She had not talked to him. She said she would contact him herself.

They are good about sharing test results and such, with a little help from me (reminding them to have copies of lab results sent to everyone, etc.), but some things seem to need some one-on-one conversation. I was asked if the allergist was planning to take my son off of the flovent? I don't know. She would like to rescope him after that, or if we're not going off of it, then now would be good. They really should talk and put together a treatment plan.

I know as the mother of the patient, I'm ultimately responsible for seeing that things get done. But I don't like being told that things will happen and then they don't.

How are the rest of you handling the multiple appointments with various doctors and the communication between them?

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