Just when we thought things were going great.... another question pops up from this mystery illness.
Jason has not been sick in over a year since we restricted his diet and put him on medications. His last biopsy was clear in January 2007 and his blood eosinophil levels have been low and decreasing.
Then today... we got the results of his blood test from this week. It was to see if the additional elimination of milk and barley was the key to getting his eosinophils to within normal limits.
Nope! His eos were very high... in fact, higher than when he was one year old when this all started and his eosinophils were 24%!! Quite frankly, I'm amazed he hasn't shown any outward symptoms such as vomitting and regurgitating while eating.
So why have his blood eos jumped way up??? It has to be one of three things, or maybe a combination of them. 1 - We reintroduced wheat back into his diet based on the fact that he recently tested negative for wheat allergy on both the scratch test and the patch test. He has been eating wheat for 3 months now without any adverse reactions. 2 - Seasonal allergies. Despite taking 1 1/2 tsp of Zyrtec a day he has been suffering major sniffles and red eyes. He has tested for environmental allergies, but there isn't a whole lot you can do about them. 3 - He has some of his sister's special egg free, milk free, corn free, etc. birthday cake. We let him have a little bit of the frosting which did have corn syrup and corn starch in it. Now, we have let him have a little bit of corn syrup and corn starch (in sprinkles or M&M's) in the past and his blood eos have been low. So, we're not 100% sure that's what did it this time.
We are waiting to hear back from the allergist as to what the plan is. Until then, I'm going to be on the look out for any outward signs of problems. I'm crossing my fingers that this is indeed a seasonal allergy issue and that the poor kid can continue to eat wheat. Otherwise, on to more food eliminations.
i am curious if you have heard of a technique called NAET? it gets rid of allergies. it may help your son. if you have any questions please feel free to email me.
ReplyDeleteI have heard of it, but it's hard to believe it. If it truly works then I would think doctors would be recommending it. Also, we're dealing with the EE component in addition to allergies. I will definitely look more into it and keep it in the back of my mind.
ReplyDeletethanks for response- i know it is hard to believe.i am an naet practitioner and it took me awhile to really believe it my self!
ReplyDeletetwo things: 1)google EE and naet, and see what comes up. there are several case studies and people with experience (that have children with EE)
2) western docs do know alot, but they do not know EVERYTHING. they have a different mindset, usually pharmaceutically driven unfortunately.They were giving your son pharmaceuticals when the change of the diet is what was called for. Diet can make such a difference with so many chronic illnesses, yet pharmaceuticals is what they reach for.They still do not believe that all these vaccines could be causing autism. 1977 we had 10. now we have 35 vaccine shots.NAET will certainly not harm your son, and it could help. It works wonders for children and food allergies, both of which is your case.Lastly, if it is doctors that you trust- there are mds that practice NAET. if you look up the website it shows the practitioners and the degrees they have. please email me with any questions,and good luck to you and your beautiful son.
Stephanie, how would I reach you? I can't find an email through your profile. I am researching the NAET stuff. Though it may not hurt my child, if it doesn't work, we'll be out a lot of money, so it's a gamble without knowing it'll work.
ReplyDeleteWe are in a 3 month wait. We will retest in July and see what we see and go from there.
ReplyDeletei just realized on the naet website testimonials there is woman who does a testimonial for ee, with her contact information to ask questions. might be worth a call.
ReplyDeleteTracy,
ReplyDeleteMy daughter is 2 and was diagnosed with EE. I was reading through the threads and saw a comment from someone named Tracy talking about NAET and was curious if you had tried that and if so what was the outcome. I am taking my daughter back in for more testing tomorrow. They believe they are missing something besides wheat, soy, egg, strawberry and rice. I will talk to the Doctor about NAET as well.
Kasydi
I was diagnosed with EE at the age of 23, and am now 24. This was in February of 2011. I have done the allergy testing, elimination diet etc., I just graduated with a BS in Health Education from a respected University. NAET, although fairly expensive is the only treatment that claims positive improvements, and the only testimonials of cured EE. Yes, I know it is something fairly new to the biased minds of the western population, but MOST Dr's are controlled by the billion dollar pharmaceutical business that's pay their checks. I was very cautious of their techniques, massage therapists, acupuncturists and so on, but after a terrible experience with TMJ and thousands of dollars on retainers and more pills, I met an Accupuncturist who solved my jaw cracking ear pressure and headaches in a 5 min sitting that has forever changed my outlook, how? By touching two points, one on my ear and one on my middle finger.
ReplyDeleteBeing said, I went from a healthy 6'1'' 225 male to a fragile 200 if not less because of EE. I suffer daily, and as your children get older they will begin to be aware of how different they are. By all means, trust your Dr, but they Do Not know everything, and there are reasons why they don't. Spend the money, what else do you have to lose? Oh just your child's sanity through being sick constantly at times. Believe me the inhalers, steroids, elimination diets, they are pathetic in controlling a much stronger manipulated immune system, these bandaid fixes are screaming that our western medicine is not helping the issue of the immune system, but just trying to cover up the symptoms. I begin NAET Tuesday of next week and will take the first step in becoming the active healthy person that I once was.