Sunday, May 24, 2009

Quick Follow-Up May 2009

I just wanted to make a quick update in regards to our most recent scope. We went in Tuesday morning last week and all went well. There is just so much involved for a 15 minute procedure, not to mention the toll it takes on the kidos.

One of my biggest pet peaves while pre-registering and having Jason get prepped by the nurse was all of the negative comments, unintentionally of course. "Oh, poor kid, what does he eat." "Oh, how terrible." Etc. Well, I hear this and think that he's most likely hearing it as well and it just puts thoughts into his head. He really only needs to hear the good stuff, really. They shouldn't be saying all of those things out loud! They should stick to "Oh, he's such a cute kid." You know?!

We are very appreciative and grateful that the scope was clear! Jason took some awesome photos of his esophagus and he is very happy. The biopsies confirmed that all was clear.

Now, we continue on the Flovent steroids and the same diet, everything "as is" for at least six months. We'll revisit with the GI at that time and decide what to do. Of course, we're all thinking the next step is to reduce or eliminate the medications. And only then can we focus on that diet.

Our intentions are to use this six months to continue the EFT and focus on all of those supposed allergies, along with the enzymes and probiotics. And by that next appointment when they say to get rid of the Flovent, we go ahead and do that, and he has no symptoms. And then maybe we'll rescope and see that he's still clear even without the steroids. And then we'll do allergy testing and simply astound the Allergist when he sees that Jason is no longer allergic to the approximately 50 items from the previous testing. And then we'll be on our way to eating more foods. And we'll rejoice!

Here's to the next six months!

2 comments:

  1. Congratulations on the clean scope!!! We aren't there yet, but we have scopes tomorrow and Friday and we are hoping for clear scopes for both my husband and daughter. It is encouraging to hear that it can be done! :)

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  2. Hello,
    I wanted to say thank you for sharing your journey with others!its nice to be able to talk to others that are walking down this road!I to have a blog and it shares our journey with our 2 1/2 daughter who has had EE since birth but was not diagnosed till 1 1/2 years ago and was not tooken serious till 3 weeks ago and treatment was not started till 3 weeks ago!due to the fact that the doctors didnt relize it was her reson for FTT!
    Congratulations on the clear scope!Lillie our daughter is getting her 3rd scope July 10th!I hope her scope comes back clear as well!Its encouraging to visit your blog and I will be looking forward to visiting your blog!thank you!!
    crystal

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